Index: Sarepta Therapeutics and eteplirsen infoStock ticker SRPT - formerly AVI BioPharma $AVII
Introduction Webcasts and Events Stock Analysis and Reporting Eteplirsen Info Media Reports and Patient Testimonials Scientific and Medical Presentations DMD and Competition Infectious Disease Pipeline Get first-hand perspective and education information from an inspiring family with two boys with DMD, plus learn how you can make a difference - visit www.DMDHero.com Here is the LETTER that served as the petition Jenn McNary spearheaded. |
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Articles and Television Programs in the Media
More and more stories are featuring the stories of the boys enrolled in the Sarepta eteplirsen trial and advocacy efforts by the DMD community. Here is a round up (last update April 2013):
Continue to the Eteplirsen and DMD Patients / Media Stories Archive for older stories.
- November 2012 "Experimental drug shows promise for local boy with muscular dystrophy" Story of Billy Ellsworth, a patient on the eteplirsen trial (wpxi.com)
- November 2012 "Billy Ellsworth Interview Duchenne Muscular Dystrophy Clinical Trial Update" (WPXI Pittsburgh)
- November 2012 "Representing Duchenne at the Congressional Rare Disease Caucus Briefing" (Parent Project MD) - this link features Congressional testimony from the mother of the two non-ambulant boys on the eteplirsen trial
- August 2012 "2 Vt. brothers battle deadly disorder, only 1 can get treatment" (WCAX)
- November 2012: Story of Evan Procko, a patient on the eteplirsen trial (CureDuchenne)
- 12/10/2012 "Mom urges drug approval to help her son" (Rutland Herald)
- 1/13/2013 "Brothers with rare disease cherish the good days" (USA Today)
- 2/6/2013 "Beverly family to plead with FDA to approve drug" (CBS Local Boston)
- 2/7/2013 "Finger Pointing Exercise" (Pat Furlong - PPMD)
- 2/7/2013 "Both My Sons Deserve to Live: A Mother’s Plea for Quicker Action from the FDA" (Time magazine)
- 2/8/2013 "Beverly family to lobby for muscular dystrophy drug" (Salem Times)
- 2/13/2013 "Beverly family seeks FDA approval for drug to combat son’s muscular dystrophy" (Wicked Local)
- 2/13/2013 "Hero Mom takes FDA fight to Washington" (Rutland Herald)
- 2/16/2013 "Saxtons River teen suffering from rare condition speaks in D.C." (Brattleboro Reformer)
- 2/25/2013 "Notes and Comments from FDA Duchenne Meeting" (John Campbell - Jett Foundation)
- 3/4/2013 GSK/Prosensa responds to PPMD and CureDuchenne following report of drisapersen hospitalizations.
- 3/14/2013 "Brooklyn boy's fight against aggressive muscular dystrophy" (Fox New York)
- 3/27/2013 - Notes from meeting of DMD advocates and UK Parliament/Shadow Minister (PPMD)
- 4/15/2013 "Is it reasonably likely to consider Eteplirsen for Accelerated Approval? (Christine McSherry- Facebook)
- 4/16/2013 "What I said to the FDA" (Jeff Foundation - Christine McSherry)
Continue to the Eteplirsen and DMD Patients / Media Stories Archive for older stories.